Everyones tired.....

One thing that is usually overlooked when raising a child with a disability is its affect on the family. This has been a long year. We have to wait until the 30 of November to get Faith in with her other new doctor. The strain on the family with these constant mood swings is becoming apparent. Everyone is short with each other, all of our patients have disappeared. Little things at work that would never bother me are now monumental for some reason. The look on my wife's face tells the story with just a short glance. It is tough to be the strong partner and parent, but sometimes I just have to raise the white flag and admit defeat. This happens to Renae mostly because she is home all day with Faith. But we just never seem to be able to do this at different times. This is a little more understanding to family, friends, and coworkers when the children have a disability that can be seen. However the offers of help and understanding do not seem to come as often to those parents of children with hidden disabilities. In most cases a person knows there will eventually be a light at the end of the tunnel, but then some of us just have to admit that there will never be a light at the end of the tunnel. I would not have it any other way to be honest. I have learned so much, my opinions changed so much, my heart shaped so much since Faith has come into my life. A day off every now and then would be nice. When she gets better we will have that, I just hope it happens soon for her sake and sometimes mine. Kris